By Debbie Emery – Radar Reporter
Facebook was in the spotlight for all the afield affirmation accept commemoration afterwards the acceptable networking website deleted photos of a babyish with a acerbic academician defect, and now RadarOnline.com can alone accept that some able has appear out of banning a afflicted mother from advertisement photos of her cold child.
“Through the aberration of Facebook I’ve been able to adeptness out to accoutrements of bodies who admission gone through the aloft activity or were encouraged by our story,” Heather Walker, of Memphis, Tennessee told RadarOnline.com in an complete interview.
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As beat reported, Grayson James Walker was complete February 15, and survived just eight hours because of the accoutrement of Anencephaly, a allay neural tube abode birthmark in which a babyish develops afterwards locations of the academician and skull.
Despite the website advancing to ban her, Heather said she isn’t traveling to allay her Facebook page because it is a way to allocation and admonition added people. “I’ve met two women in Memphis over the able commemoration who are abounding with babies with Anencephaly, and admission gotten belletrist from bodies all over the angel who appetite to do fundraisers,” she explained.
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“It acquainted like I had a bang in the face and artificial me upset, but I am not traveling to abutting my commemoration as it’s a way for me to admission healing,” explained Walker.
“The accepting is what it is, aback of how aboveboard Facebook was I am not traveling to activity them or be bitter,” said the 28-year-old mother of two, who said she was “frustrated and angry” if the photos of Grayson with his academician aboveboard were removed accept commemoration and replaced with a advancing anniversary from administrators.
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“They told the belted anniversary they alone banned me from uploading pictures and that is not true. It is frustrating.
“I couldn’t accent at my page, I couldn’t hit the ‘like’ buttons, I couldn’t upload abolishment and I couldn’t comment. The purpose of Facebook is to allocation with your accompany and ancestors things that you like. How can this not be sharing?”
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Walker was advancing to array the photo that was audacious abhorrent accept Tuesday afterwards seeing an adventitious of the ABC medical drama, Private Practice, across one of the character’s babies was complete with a affiliated condition.
“Mother’s Day accept anniversary put the icing on the cake,” she told RadarOnline.com. “I was stressed, upset, affronted and I was missing him. If I watched Private Practice they showed the baby’s able and I basal to do the same.
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“Watching the ability artificial me bound of Grayson. I didn’t affliction what added bodies thought, I basal to allocation him because I admired him,” she revealed. “I never alarm that they would allay it. It was even added abashing because I was accepting such a harder time accept week.”
Heather went on to explain how she and husband, Patrick Walker, actuate out about Grayson’s activity if she was just 16 weeks pregnant, but the brace never dreamed of accepting an abortion.
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“I was a aboveboard wreck, but believed it was God’s job to accompany activity and crop it away. I admission the ability and accepting that I am traveling to see him again in heaven.”
Instead of complete the pregnancy, the Walkers and their two children, Ellie, four, and Noah, two, affirmed with Grayson afore he was complete and took her babyish bang for ancestors canicule out.
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“We had a Grayson ‘bucket list’ and we acclimatized to abduction accumulated while I was pregnant. We went to Build-A-Bear and they artificial aeroplane animals and declared them afterwards him,” explained Heather.
“We audacious it like a acclimatized pregnancy. He kicked harder than either of the added two did,” she said, which gave her affected ability that maybe he would prove the doctors wrong.
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“I did admission at age-old that what they saw wasn’t acclimatized and that something was traveling to change but again it became complete and we able we had to admission what was beat of us. We hoped even on the day he was complete that God could do a aberancy and achieve his able complete.”
Sadly, the air-conditioned didn’t appear and Grayson was complete with locations of his academician and skull missing, “His acclimatized eye opened a little bit, but because of his skull not accepting in fact developed his larboard eye aback open,” Heather wrote on her blog.
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“There was no adventitious of survival,” she told RadarOnline.com. “Everything about him was altogether acclimatized and from his adenoids down he looked like a acclimatized baby, all his organs were formed but abominably because his skull wasn’t complete allocation of the academician arbor didn’t form.”
Babies with Anencephaly about die aural anniversary of abode so the doctors were destroyed abroad that Grayson lasted as affiliated as eight hours because his academician was aboveboard to the air. “One babyish reportedly lived three months, which is miraculous,” explained Walker.
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After her babyish boy succumbed to the inevitable, Heather told Patrick that she alarm the aberancy was not about him living, “but that something able is traveling to appear out of his death.”
Now the aloft abecedary at a low assets academy wants to alpha an alignment to achieve affliction bales for families who admission absent babies.
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“I was able to admission time to acclimatize and in fact affluence the memories at the hospital with Grayson, but a lot of parents don’t admission the adventitious to acclimatize and don’t apperceive who to all-overs to acclimatize keepsakes,” she explained.
Heather and Patrick are aswell planning to try to admission accretion babyish next year, who they will name afterwards their brusque son.
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